While at Digestive Disease Week, I spent some time talking with the University of Chicago Celiac Disease Center people. I had heard about their care package program years ago, but it had slipped to the back of my mind. I wanted to share it with you in case you or your child has been recently diagnosed.
The care package program is designed to help those newly-diagnosed to learn about gluten-free products. It is actually quite a large basket full of goodies from a wide variety of gluten-free companies, as well as helpful information for new patients and support group information.
How do you get one of these packages?
If you or your child has been biopsy-diagnosed with Celiac Disease within the last 3 months, and you live in the United States, then call the University of Chicago Celiac Disease Center at (773) 702-7593.
Let others know about this, as it is a great service for those who are newly diagnosed.
Comments
One response to “Newly Diagnosed Celiac Care Package”
My daughter would have LOVED this! We would have been ever so grateful for any and all information provided, along with a care package, but she was diagnosed 3 years ago.
I’m happy that they are offering this to people newly diagnosed, but sad too because she missed out. I remember walking aimlessly through the grocery store aisles…no clue what to do or what to buy. I felt so lost. I was crying in the aisles while trying to read ingredients on packages, trying to get the scanner thing to work on my smartphone. It took me hours. Today I still have many frustrations as foods change so often. Obviously not everything is marked if it contains gluten or not, but it’s getting there. I try to eat more naturally gluten free foods, then fill in with things here and there. Eating out is crazy though, always dread it!
Both my daughter and I have Celiac Disease, she’s a triplet. Just wondering if my 2 sons, her 2 triplet brothers will be too. Bloodwork was negative for her and I, as well as my boys. No further testing for them yet, says their doctor.