Delightfully Gluten Free (TM)

Newly Diagnosed Celiac Care Package

While at Digestive Disease Week, I spent some time talking with the University of Chicago Celiac Disease Center people.  I had heard about their care package program years ago, but it had slipped to the back of my mind.  I wanted to share it with you in case you or your child has been recently diagnosed.

The care package program is designed to help those newly-diagnosed to learn about gluten-free products.  It is actually quite a large basket full of goodies from a wide variety of gluten-free companies, as well as helpful information for new patients and support group information.

How do you get one of these packages?

If you or your child has been biopsy-diagnosed with Celiac Disease within the last 3 months, and you live in the United States, then call the University of Chicago Celiac Disease Center at (773) 702-7593.

Let others know about this, as it is a great service for those who are newly diagnosed.







One response to “Newly Diagnosed Celiac Care Package”

  1. D R Avatar
    D R

    My daughter would have LOVED this! We would have been ever so grateful for any and all information provided, along with a care package, but she was diagnosed 3 years ago.

    I’m happy that they are offering this to people newly diagnosed, but sad too because she missed out. I remember walking aimlessly through the grocery store aisles…no clue what to do or what to buy. I felt so lost. I was crying in the aisles while trying to read ingredients on packages, trying to get the scanner thing to work on my smartphone. It took me hours. Today I still have many frustrations as foods change so often. Obviously not everything is marked if it contains gluten or not, but it’s getting there. I try to eat more naturally gluten free foods, then fill in with things here and there. Eating out is crazy though, always dread it!

    Both my daughter and I have Celiac Disease, she’s a triplet. Just wondering if my 2 sons, her 2 triplet brothers will be too. Bloodwork was negative for her and I, as well as my boys. No further testing for them yet, says their doctor.